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‹ Thu · 4 Jun 2026
Underserved or high-risk populations

Genotype before phenotype? Reversing the diagnostic odyssey in genomic medicine

Genetic sequencing for rare diseases is catching diagnoses earlier by identifying mutations before symptoms fully emerge, though interpretation challenges remain.

This perspective reviews the shift from phenotype-driven to genotype-first diagnosis in rare genetic disorders, enabled by WES/WGS, newborn genomic screening, and large biobanks, and discusses how reverse phenotyping can shorten the diagnostic odyssey. Key challenges including VUS interpretation and partial phenotype explanation are highlighted, calling for integrated genomic-clinical data frameworks.

What the study was

Study design
Perspective/narrative review
Population
Rare genetic disorder patients
Category
Genomics/Precision Medicine
Maturity
Validated
Journal
Eur J Med Genet

Why it surfaced

Relevant conceptual framework for rare disease genomic medicine. No new primary data — perspective piece.

A plain-language summary of published research — not medical advice. Talk to a clinician about your own care.