Parental acceptability of newborn screening expansion in the genomic era: A nationwide French survey informed by the Theoretical Framework of Acceptability (SeDeN-p3).
French parents largely accept expanded genetic screening of newborns, informing ethical policies for population-level genomic testing in other nations.
This nationwide French survey (SeDeN-p3 study) assesses parental acceptability of expanded genomic newborn screening using the Theoretical Framework of Acceptability. Results inform the societal and ethical implementation of population-level genomic screening for rare diseases.
What the study was
- Study design
- Nationwide cross-sectional survey — parents of neonates
- Population
- Parents of newborns in France participating in expanded newborn screening programs
- Category
- Public Health
- Maturity
- Exploratory
- Journal
- PLoS One
Why it surfaced
Nationwide survey on newborn screening acceptability — important for genomic screening policy. Limited novelty (similar surveys exist), moderate relevance for rare disease early detection. Score 5/10.
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