Role of the Nurse Coordinator in Hemophilia Gene Therapy.
Nurse coordinators play a vital advocacy and education role in hemophilia gene therapy programs, supporting patient care.
Since the 1990s, clinical trials have studied the feasibility, safety, efficacy, and challenges of using gene therapy to cure hemophilia. The nurse coordinator role serves as liaison, advocate, and educator for patients and other clinicians.
What the study was
- Study design
- Literature review
- Population
- Cancer/disease patients
- Category
- Treatment Innovation
- Maturity
- Exploratory
- Journal
- Clinical journal of oncology nursing
Why it surfaced
Matched topic(s): Rare diseases with high unmet need. Study design: Literature review. Score 6/10.
A plain-language summary of published research — not medical advice. Talk to a clinician about your own care.